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ADDRESS OF JOHN PAUL II
TO THE PARTICIPANTS IN THE INTERNATIONAL CONGRESS
ON "LIFE-SUSTAINING TREATMENTS AND VEGETATIVE STATE:
SCIENTIFIC ADVANCES AND ETHICAL DILEMMAS"
Saturday, 20 March 2004
Distinguished Ladies and
Gentlemen,
1. I cordially greet all of you
who took part in the International Congress: "Life-Sustaining
Treatments and Vegetative State: Scientific Advances and Ethical
Dilemmas". I wish to extend a special greeting to Bishop Elio
Sgreccia, Vice-President of the Pontifical Academy for Life, and to
Prof. Gian Luigi Gigli, President of the International Federation of
Catholic Medical Associations and selfless champion of the fundamental
value of life, who has kindly expressed your shared feelings.
This important Congress, organized
jointly by the Pontifical Academy for Life and the International
Federation of Catholic Medical Associations, is dealing with a very
significant issue: the clinical condition called the "vegetative
state". The complex scientific, ethical, social and pastoral
implications of such a condition require in-depth reflections and a
fruitful interdisciplinary dialogue, as evidenced by the intense and
carefully structured programme of your work sessions.
2. With deep esteem and sincere
hope, the Church encourages the efforts of men and women of science who,
sometimes at great sacrifice, daily dedicate their task of study and
research to the improvement of the diagnostic, therapeutic, prognostic
and rehabilitative possibilities confronting those patients who rely
completely on those who care for and assist them. The person in a
vegetative state, in fact, shows no evident sign of self-awareness or of
awareness of the environment, and seems unable to interact with others
or to react to specific stimuli.
Scientists and researchers realize
that one must, first of all, arrive at a correct diagnosis, which
usually requires prolonged and careful observation in specialized
centres, given also the high number of diagnostic errors reported in the
literature. Moreover, not a few of these persons, with appropriate
treatment and with specific rehabilitation programmes, have been able to
emerge from a vegetative state. On the contrary, many others
unfortunately remain prisoners of their condition even for long
stretches of time and without needing technological support.
In particular, the term
permanent vegetative state has been coined to indicate the condition
of those patients whose "vegetative state" continues for over a year.
Actually, there is no different diagnosis that corresponds to such a
definition, but only a conventional prognostic judgment, relative to the
fact that the recovery of patients, statistically speaking, is ever more
difficult as the condition of vegetative state is prolonged in time.
However, we must neither forget
nor underestimate that there are well-documented cases of at least
partial recovery even after many years; we can thus state that medical
science, up until now, is still unable to predict with certainty who
among patients in this condition will recover and who will not.
3. Faced with patients in similar
clinical conditions, there are some who cast doubt on the persistence of
the "human quality" itself, almost as if the adjective "vegetative"
(whose use is now solidly established), which symbolically describes a
clinical state, could or should be instead applied to the sick as such,
actually demeaning their value and personal dignity. In this sense, it
must be noted that this term, even when confined to the clinical
context, is certainly not the most felicitous when applied to human
beings.
In opposition to such trends of
thought, I feel the duty to reaffirm strongly that the intrinsic value
and personal dignity of every human being do not change, no matter what
the concrete circumstances of his or her life. A man, even if
seriously ill or disabled in the exercise of his highest functions, is
and always will be a man, and he will never become a "vegetable" or
an "animal".
Even our brothers and sisters who
find themselves in the clinical condition of a "vegetative state" retain
their human dignity in all its fullness. The loving gaze of God the
Father continues to fall upon them, acknowledging them as his sons and
daughters, especially in need of help.
4. Medical doctors and health-care
personnel, society and the Church have moral duties toward these persons
from which they cannot exempt themselves without lessening the demands
both of professional ethics and human and Christian solidarity.
The sick person in a vegetative
state, awaiting recovery or a natural end, still has the right to basic
health care (nutrition, hydration, cleanliness, warmth, etc.), and to
the prevention of complications related to his confinement to bed. He
also has the right to appropriate rehabilitative care and to be
monitored for clinical signs of eventual recovery.
I should like particularly to
underline how the administration of water and food, even when provided
by artificial means, always represents a natural means of
preserving life, not a medical act. Its use, furthermore, should
be considered, in principle, ordinary and proportionate,
and as such morally obligatory, insofar as and until it is seen to have
attained its proper finality, which in the present case consists in
providing nourishment to the patient and alleviation of his suffering.
The obligation to provide the
"normal care due to the sick in such cases" (Congregation for the
Doctrine of the Faith, Iura et Bona, p. IV) includes, in fact,
the use of nutrition and hydration (cf. Pontifical Council "Cor Unum",
Dans le Cadre, 2, 4, 4; Pontifical Council for Pastoral
Assistance to Health Care Workers, Charter of Health Care Workers,
n. 120). The evaluation of probabilities, founded on waning hopes for
recovery when the vegetative state is prolonged beyond a year, cannot
ethically justify the cessation or interruption of minimal care
for the patient, including nutrition and hydration. Death by starvation
or dehydration is, in fact, the only possible outcome as a result of
their withdrawal. In this sense it ends up becoming, if done knowingly
and willingly, true and proper euthanasia by omission.
In this regard, I recall what I
wrote in the Encyclical
Evangelium Vitae,
making it clear that "by euthanasia in the true and proper sense
must be understood an action or omission which by its very nature and
intention brings about death, with the purpose of eliminating all pain";
such an act is always "a serious violation of the law of God,
since it is the deliberate and morally unacceptable killing of a human
person" (n. 65).
Besides, the moral principle is
well known, according to which even the simple doubt of being in the
presence of a living person already imposes the obligation of full
respect and of abstaining from any act that aims at anticipating the
person's death.
5. Considerations about the
"quality of life", often actually dictated by psychological, social and
economic pressures, cannot take precedence over general principles.
First of all, no evaluation of
costs can outweigh the value of the fundamental good which we are trying
to protect, that of human life. Moreover, to admit that decisions
regarding man's life can be based on the external acknowledgment of its
quality, is the same as acknowledging that increasing and decreasing
levels of quality of life, and therefore of human dignity, can be
attributed from an external perspective to any subject, thus introducing
into social relations a discriminatory and eugenic principle.
Moreover, it is not possible to
rule out a priori that the withdrawal of nutrition and hydration,
as reported by authoritative studies, is the source of considerable
suffering for the sick person, even if we can see only the reactions at
the level of the autonomic nervous system or of gestures. Modern
clinical neurophysiology and neuro-imaging techniques, in fact, seem to
point to the lasting quality in these patients of elementary forms of
communication and analysis of stimuli.
6. However, it is not enough to
reaffirm the general principle according to which the value of a man's
life cannot be made subordinate to any judgment of its quality expressed
by other men; it is necessary to promote the taking of positive
actions as a stand against pressures to withdraw hydration and
nutrition as a way to put an end to the lives of these patients.
It is necessary, above all, to
support those families who have had one of their loved ones struck
down by this terrible clinical condition. They cannot be left alone with
their heavy human, psychological and financial burden. Although the care
for these patients is not, in general, particularly costly, society must
allot sufficient resources for the care of this sort of frailty, by way
of bringing about appropriate, concrete initiatives such as, for
example, the creation of a network of awakening centres with specialized
treatment and rehabilitation programmes; financial support and home
assistance for families when patients are moved back home at the end of
intensive rehabilitation programmes; the establishment of facilities
which can accommodate those cases in which there is no family able to
deal with the problem or to provide "breaks" for those families who are
at risk of psychological and moral burn-out.
Proper care for these patients and
their families should, moreover, include the presence and the witness of
a medical doctor and an entire team, who are asked to help the family
understand that they are there as allies who are in this struggle with
them. The participation of volunteers represents a basic support to
enable the family to break out of its isolation and to help it to
realize that it is a precious and not a forsaken part of the social
fabric.
In these situations, then,
spiritual counselling and pastoral aid are particularly important as
help for recovering the deepest meaning of an apparently desperate
condition.
7. Distinguished Ladies and
Gentlemen, in conclusion I exhort you, as men and women of science
responsible for the dignity of the medical profession, to guard
jealously the principle according to which the true task of medicine is
"to cure if possible, always to care".
As a pledge and support of this,
your authentic humanitarian mission to give comfort and support to your
suffering brothers and sisters, I remind you of the words of
Jesus: "Amen, I say to you, whatever you did for one of these least
brothers of mine, you did for me" (Mt 25: 40).
In this light, I invoke upon you
the assistance of him, whom a meaningful saying of the Church Fathers
describes as Christus medicus, and in entrusting your work to the
protection of Mary, Consoler of the sick and Comforter of the dying, I
lovingly bestow on all of you a special Apostolic Blessing.
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